There’s good news and bad news on the survivorship front- always. Whether it’s struggling with the ongoing effects from treatment or celebrating another milestone, long-term Hodgkin’s survivors have learned the hard way that being a survivor comes with a cost. It may be a physical, emotional, or financial one, but eventually, there will be a price to pay for being pronounced “cured.”
Here’s the good news: we ARE living longer than expected. We are doing things that we never thought possible: going to school, having careers, having families, living long enough to contemplate things like “retirement.” For many of us, however, this has been a VERY bumpy road. It has been fraught with never-ending health battles and a near constant state of uncertainty. When we can work, how long we can work, whether or not we have medical insurance that covers all of our costs- these are just a few of the questions that survivors must deal with. The financial consequences of secondary effects of cancer may be beyond challenging for some- they may be devastating.
Throughout the month of March, we will be highlighting issues relating to employment, disability, and insurance for long-term survivors. We will include the perspective of those who live in other countries, not just the United States. This is NOT an easy subject to tackle, and our hope is to do it in a way that is respectful to all. We will be posting research studies, articles, as well as personal stories on our Facebook Page. We hope you will join us, adding your own story, thoughts, etc. so that we have a diverse representation of the experiences of our community.
Find us on Facebook (link at the bottom of this page), and add your voice to the discussion. We’d love to hear from you!