You are not alone!
Like many of you, we have been desperate for information- information that was sometimes hard to find, even from our health care providers. Cancer survivorship is still a relatively new field, and for “good” reasons. When we were treated for Hodgkin’s years and years ago, the survival rate was much lower than it is today. The primary goal of medicine decades earlier was to CURE cancer, period. The long-term effects of radiation and chemotherapy are only now being understood.
Far too many Hodgkin’s survivors have discovered that they are at risk for serious health issues AFTER they began to have symptoms. Worse, they often have to convince their doctors that their symptoms are real.
This website is designed to give Hodgkin Lymphoma survivors up-to-date information about anything and everything related to survivorship. You will find stories from other survivors, all who have “been there, done that” in “Survivor Voices” on our “Resources” page. On the same page, you can view a bibliography of scholarly, clinical articles about long-term effects under “Articles/Research Papers on Late Effects.” There are a number of helpful hints, blogs, and suggested readings in the “News Feed” section of Resources. All of these can be reached by clicking the tabs at the top of our Home Page.
We will be adding new topics every month to our Home Page, and we invite you to share your own thoughts, ideas, concerns, and questions. (If we can’t find an answer, we’ll find someone who CAN!)
Thanks for visiting, and welcome!