Our Board of Directors established Hodgkin's International in search of a solution to some unusual medical problems occurring years after our treatment. Our regular doctors were often befuddled and didn’t know how to help us.
We, as long lived Hodgkin’s patients, want to help advocate for the changes needed to support survivors like us live a happy and healthy life.
Sharon Robinson DelBusso
Sharon was in graduate school when she was diagnosed at the age of 22 with Hodgkin’s Disease stage 2A. She underwent a staging laparotomy /splenectomy and mantle radiation. Since her treatment, late effects, including several secondary cancers, have occurred. Sharon realized a lifelong career as an administrator and is now retired. She has been active with Leukemia and Lymphoma Society’s Team in Training since 2000. Sharon resides in Bethesda, MD.
Erin Geddis Cummings, MSW, LCSW
Diagnosed with HL in 1975 at the age of 15, Erin underwent surgery, radiation, and MOPP chemotherapy. She has had a number of long term effects, including heart and lung issues. Erin has an MSW and is a Licensed Clinical Social Worker. She lives in the Boston area and volunteers at at a therapeutic horseback riding program.
Karla was diagnosed with HL as a teenager in 1976 and treated with surgery and mantle radiation. She has experienced a variety of late effects and explored allopathic and alternative solutions in order to live a healthy life. Karla is an educator with a lifelong career in New York State public schools. She has been involved with HL survivorship advocacy and support since 2013. She lives in New York State’s Capital District.
Sandra (Sandi) M. Liberatori, Esq.
While studying law in 1983, Sandi was diagnosed with HL. After a lymphangiogram and a staging laparotomy, she was treated with radiation and went on to finish her education and start a career. Twenty-five years later she began her ongoing struggle with a series of late effects. Sandi continues to practice law since 1985, in the Commonwealth of Pennsylvania.
Diagnosed with Hodgkin’s Lymphoma in 1991 at age 25, Nancy underwent surgery for staging and splenectomy and mantle and abdominal radiation, but suffered a recurrence of her Hodgkin’s in 1997. She was then treated with ABVD chemotherapy. Nancy later developed sarcoidosis and has had a number of long term effects, including heart, lung, GI and thyroid issues. Nancy is an RN, working primarily in cardiopulmonary intensive care as well as in the health insurance industry. She resides in southern NJ and participates in water exercise classes for strength and conditioning. Nancy lives with her husband and 3 teenage daughters.
Jane was at boarding school in England when she was diagnosed with HL stage IIIA at the Royal Marsden Hospital, Sutton in 1978. She underwent a splenectomy, mantle radiotherapy and ChIVPP chemotherapy. She has suffered several late effects, including lymphedema and coronary artery issues- 35 years post treatment. She is a freelance translator working in Granada, Spain, anxious to promote late effects awareness in Spain amongst healthcare professionals and patients.
Tess was diagnosed with stage 1A HL in 1982 at the age of 18, early in her medical training. She was treated with splenectomy and mantle field radiotherapy. She lives and works as a general practitioner in Oxfordshire, England, and has a special interest in end of life care. Because of her personal insights into late effects, she feels passionate about education and provision of information to healthcare professionals and patients alike.
Cathy was diagnosed in 1989 at the age of 29 with HL, recurring again in 1994. Post-Hodgkin’s, Cathy went on to encounter many late effects, including breast cancer. Her background is in Aerospace Materials Management. She is currently works with Orthopedic surgeons. Cathy has strived to enhance her survivorship years with good nutrition. Along with volunteering in the cancer community, she actively participates in a local PlantPure Pod in Northeast Pennsylvania.
SOPHIA SMITH, PH.D
Sophia was diagnosed with HL as a teenager in 1975 and treated with MOPP/ABVD and radiation at Memorial Sloan-Kettering Hospital. She has experienced a variety of late effects including breast cancer diagnosis in 1996. Following this second cancer diagnosis, Sophia left a successful career in information technology at IBM to pursue her MSW and PhD in social work at the University of North Carolina at Chapel Hill. She is an Associate Professor at the Duke School of Nursing where she teaches and conducts research that blends her love for technology with a passion for helping others.
Diagnosed with Hodgkin’s at age 17 in 1989, Kat was treated with mantle radiation, and subsequently with a splenectomy, LOPP, and EVAP chemotherapy. As a consequence, she has had a number of long term effects, including both heart and lung issues. Kat currently lives in the UK and is employed as a Counsellor and Assistant Co-ordinator of a Youth Counselling Service. She is also on Macmillan’s Patient reference group for “The Consequences of Treatment/VMDT project” and administrates a Facebook support group for the late effects of Hodgkin Lymphoma treatment.
Susan was a teen in 1983 when she was diagnosed with HL. She underwent a biopsy, staging laparotomy, and splenectomy at Children’s Hospital in Oklahoma City. Her treatment included mantel radiation, MOPP, and CHOPP chemotherapy. Her late effects include heart and lung issues, and radiation fibrosis of the neck and shoulders. Susan lives in Colorado where she is a teacher and an active volunteer in the heart and cancer communities.